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Noah's Hope annual fundraiser set for Nov. 16

Published: Monday, Nov. 4, 2013 2:54 p.m. CDT

DOWNERS GROVE – Noah's Hope, the charity organization founded by a Downers Grove family to find a cure for Batten disease, will host its annual benefit at 5 p.m. Nov. 16 at the Cotillion Banquets in Palatine.

The event is hosted with Cures Within Reach.

For tickets and more information, visit www.cureswithinreach.org/events/a-fifth-season.

Jennifer and Tracy VanHoutan started Noah's Hope after two of their children, Noah and Laine, were diagnosed with Batten disease. It is an extremely rare, degenerative genetic disease.

For the first few years, the kids developed normally, talking, and laughing. But between the ages of two and six, the children began to lose muscle coordination and experience seizures. Within a few years, they began losing their ability to speak, walk, and feed themselves as their little bodies slowly shut down, according to information provided by Noah's Hope.

The children are now fed with feeding tubes, and are in wheelchairs. At this time, Batten disease is terminal between the ages of 8 and 12.

The fundraiser will provide a big benefit experience with a relaxed atmosphere, according to a press release. It will feature live music, special appearances, live and silent auctions, and appetizers, dessert and open bar.

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